For all of my life I'd been extremely healthy. I'd never had any health issues, so to go from being perfectly healthy to having this very rare disease was scary. In a lot of people it is very severe. Some people go blind, you can have neuro-lesions which affect your brain, so I was very nervous.
我的一生都非常健康。我从来没有任何健康问题，所以从完全健康到患上这种罕见的疾病是可怕的。对很多人来说，这是非常严重的。有些人失明了，会有神经损伤影响大脑，所以我很紧张。